Here we are in August and a nightmare about PANDAS caused me to update this blog about Madeline. My last post was made back in May right before Madeline's trip to the neurologist. But I forgot to post an update. I posted a quick one on Facebook with the picture below and said the following,
"Update on Madeline's neuro appt... nothing neurological was wrong (praise God!) and the neurologist concurs the sudden onset was caused by auto immune disorder PANDAS. She took more blood and a throat culture (Madeline was not pleased, but such a trooper), waiting on those results. If another strep infection and episode happens, we will treat like last time and also see an Infectious Disease and NT doc. Thanks everyone for your concerned comments, encouraging thoughts and prayers."
Her bloodwork came back pretty much the same as the time before, her levels a little above normal, but docs figure that is her baseline normal. Gosh it seems like PANDAS this summer has become a distant memory. She finished 3rd grade making straight A's, we had a busy summer that included a vacation to Florida and Disney World, and she's been enjoying their summer nanny (a fun and creative gal). She is about to start 4th grade in a few weeks. I even stopped being anxious about PANDAS reoccurring...up until a couple of days ago. Madeline complained about a sore throat a couple weeks ago. The other night I woke up in a sweat, just dawned on me this is the first time she's been "sick" since back in February. The sore throat has seemed to subside but now I worry...did she have the strep virus, will the OCD start up soon, will it be worse than the first episode. I could take her to the doc, have bloodwork drawn and a throat culture done. I hate to put her through more of that. Or we could wait it out and see if any symptoms reappear. So we wait. Praying she stays the same ole Madeline and that PANDAS doesn't show it's ugly face again!